Author: Marianne Matzo
Publisher: Springer Publishing Company
This fourth edition of a comprehensive text/reference that has been valued by students, educators, and practicing nurses for many years, Palliative Care Nursing continues to reflect the fundamental basic and advanced hospice and palliative care nursing competencies that are required for effective and empathetic care of patients and families. This new edition focuses on palliative care that is responsive to the demand for health care reform in America and globally. It provides the knowledge, scientific evidence, and skills needed by nurses to address the complex physical, emotional, social, and spiritual needs of patients and families within the context of a changing health care delivery system. With a focus on interprofessional collaboration, the book emphasizes the value of complementary, holistic models in promoting health, wholeness, and wellness across the illness trajectory, even as death approaches.
Palliative Care for Patient and Families Joyce V Zerwekh ... We were one of the
first hospice programs in the country and provided home care before the
government or insurance companies became involved; that was when the only
Author: Joyce V Zerwekh
Publisher: F.A. Davis
Nursing Care at the End of Life: Palliative Care for Patients and Families explores the deep issues of caring for the dying and suffering. The book is based on the Hospice Family Caregiving Model previously published by the author and focuses on the practice implications of care for the dying. The book is written in a clear and user-friendly style, and is ideal for undergraduate nursing students learning about dying, suffering, and caring for individuals and their families.
This user-friendly guide offers you practical, direct answers for the difficult and little-taught questions that arise when providing care for the dying.
Author: Barry Kinzbrunner
Publisher: McGraw Hill Professional
This user-friendly guide offers you practical, direct answers for the difficult and little-taught questions that arise when providing care for the dying. Features: * Perspectives of patients, families, and other health care professionals, as well as physicians * Solution-oriented coverage on preparing patients, managing symptoms, and handling legal/ethical issues near the end of life * Guidance on timing: when is end-of-life care needed? * Breaking bad news: how to inform the patient * Useful, current, guidelines on the treatment of pain, dyspnea, skin and mucus membrane problems, gastrointestinal conditions, and other common symptoms near the end of life * In-depth discussion of end-of-life controversies, including advance directives and resuscitation, nutritional support and parenteral hydration, and physician-assisted suicide * How to assess quality of life near its end * Practical help with end-of-life care for special groups, such as HIV and pediatric patients * Guidance on bereavement, depression, and other psychosocial and spiritual issues at the end of life * Suggestions on benefiting from interdisciplinary teamwork * What every clinician needs to know about the last days of the actively dying
This chapter examines the ethical issues in advanced disease and end-of-life
care. The ethical framework for the clinical approach to advanced disease and
end-of-life care is one of comfort and dignity in advanced disease and during the
Author: Kim K. Kuebler
Publisher: Elsevier Health Sciences
Provides the guidelines and tools you need to provide patients and families with comprehensive, evidence-based interventions.
KEY FACTS ABOUT THE FUNDING OF HOSPICE CARE Expenditure by
independent charitable hospices in the UK was ... Primary Care Trusts indicated
that some kind of palliative care marketplace was likely develop but in most
places this ...
Author: Great Britain: Parliament: House of Commons: Committee of Public Accounts
Publisher: The Stationery Office
This report examines the scale and quality of end of life care; the current and future approach to commissioning and funding of services; and the capability and capacity of NHS and social care staff to provide such care. In England approximately half a million people die each year. Around three quarters of deaths follow a period of chronic illness, such as cancer or heart disease, where people may need access to end of life care. End of life care services seek to support those with advanced, progressive, incurable illness to live as well as possible until they die. The provision of end of life care is becoming increasingly complex, often requiring a complex mix of health and social care services. End of life care is delivered by many people, including families and friends, specialist palliative care staff, and generalist staff such as doctors, nurses and social workers, for whom end of life care represents a varying proportion of their role. There are no full estimates of the full financial cost of end of life care, but in 2006-07 primary care trusts estimated they spent £245 million on specialist palliative care, delivered by around 5,500 staff with specific training in the management of pain and other symptoms. Most people would prefer not to die in hospital but a lack of NHS and social care support services means that many people do so when there is no clinical need for them to be there. The Department of Health published its End of Life Care Strategy in 2008 which commits additional funding of £286 million over two years, and aims to increase the availability of services in the community and develop the skills of health and social care staff.
When we launched the End of Life Care Strategy1 in July 2008, the challenge of
promoting high quality care for everyone at the end of life was considerable. Over
half the population of England and Wales were dying in hospital despite the ...
Author: Claire Henry
Publisher: Jessica Kingsley Publishers
As someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.
The most thorough text available on providing patients and families with quality end-of-life care "The study/learning questions at the end of each chapter make this book an excellent resource for both faculty who wish to test knowledge, and ...
Author: Barry Kinzbrunner
Publisher: McGraw Hill Professional
The most thorough text available on providing patients and families with quality end-of-life care "The study/learning questions at the end of each chapter make this book an excellent resource for both faculty who wish to test knowledge, and individual learners who wish to assess their own learning....The book is well written and easy to read. 3 Stars."--Doody's Review Service End of Life Care: A Practical Guide offers solution-oriented coverage of the real-world issues and challenges that arise daily for clinicians caring for those with life-limiting illnesses and conditions. End of Life Care: A Practical Guide includes specific clinical guidance for pain management and other common end of life symptoms. The second edition has been made even more essential with the addition of chapter-ending Q&A for self assessment and board review, new coverage of multicultural medicine, an increased number of algorithms to assist decision making on complicated clinical, legal, and ethical issues. Six sections walk you through the complexities of caring for patients who are nearing the end of life: Preparing Patients for End of Life Management of Symptoms Diagnostic and Invasive Interventions Ethical Dilemmas Special Populations Diversity No other text better assists physicians and other clinicians in providing patients near the end of life with support, guidance, and hope in the face of “hopelessness” than End of Life Care: A Practical Guide.
In a sense, care of the dying is both a ''keystone'' and a ''keystone species'' in the
health care system. Failure to care well for seriously ill and dying people reflects
the limitations that permeate the health care system—from gaps in clinician ...
Author: Joanne Lynn M.D.
Publisher: Oxford University Press
Health care professionals seeking to improve the quality of life for those living with serious illness and nearing the end of life will find exactly what their organization needs in the second edition of this acclaimed book by Dr. Joanne Lynn and her colleagues. Improving Care for the End of Life provides expert guidance on how to make significant improvements now, at all levels of the health care system from the bedside and the hospital to the health care policy and legislative arenas by using the rapid-cycle breakthrough approach to change. The ideas are proven, and the stories of teams that have put them to use will inspire and enlighten. New to the second edition: · New chapters to address issues of growing interest such as continuity of care, and the special needs of dementia patients and their loved ones. · Details on trajectories of care and how these affect decisions at the end of life · Updated and expanded information on pain management, advance care planning, ventilator withdrawal, depression and delirium, advanced heart and lung disease, and more · Scores of new insights, measurement approaches, and tips based on the experiences of hundreds of improvement teams nationwide · Thoroughly updated references The sourcebook speaks to all managers of health care systems serving people with serious illnesses, including doctors in offices, nurse managers on hospital units, social workers in long-term care facilities, administrators of home care and hospice agencies, hospital chaplains, directors of volunteer services, and others.
As a palliative care chaplain working in a secular healthcare environment,
Yalom's non-religious emphasis on connectivity is relevant to my context. There
is a strand within the literature on hope in palliative care that pushes hope firmly
Author: Steve Nolan
Publisher: Jessica Kingsley Publishers
Chaplains in healthcare settings offer patients spiritual care that involves companionship, counselling and maintaining hope. This is particularly important at the point where a patient has run out of treatment possibilities. This book reflects creatively on the work that chaplains do with people who are dying and the unique quality of the relationship that palliative care professionals construct with patients at the end of life. Based on qualitative research with practising palliative care chaplains, Spiritual Care at the End of Life explores the nature of hope in its different forms at different stages of terminal illness, and asks how chaplains can help dying people to be hopeful even when facing the inevitability of their death. The book identifies key moments in this relationship, from the person's initial reaction to the chaplain, to the chaplain becoming an accompanying presence and creating the potential to provide comfort, strength and "hope in the present". This thoughtful and inquisitive book investigates the underlying theory that spiritual care is rooted in relationship. It has implications for practice in the work of chaplains, counsellors and all healthcare professionals supporting people who are dying.
Designated a Doody's Core Title!/span Winner of an AJN Book of the Year Award The second edition of this award-winning text provides the essential guide to achieving best practices in palliative care nursing.
Author: Marianne LaPorte Matzo
Publisher: Springer Publishing Company
"This textbook has...introduced concepts and methods of education which [help] to move palliative nursing forward as an evidenced based practice of whole person care." -- Betty Ferrell, PhD, FAAN Research Scientist (From the Foreword) "In this comprehensive textbook on palliative care nursing, editors Marianne Matzo and Deborah Witt Sherman succeed in bringing together the heart of nursing and the true meaning of palliative care with the most current evidence based practice." --GeriPal Palliative care is a philosophy of caregiving that integrates disease modification with supportive, compassionate therapies for patients at the end of life. Palliative care nurses are responsible for alleviating pain and other physical symptoms-along with satisfying the emotional, social, cultural, and spiritual needs of patients who are facing life-threatening illness. This third edition of Palliative Care Nursing provides more comprehensive newly updated content, knowledge, attitudes, skills, and cutting-edge teaching and learning strategies to achieve the AACN End-of-Life nursing competencies providing a lifespan approach. Now in its third edition, this book continues to emphasize the value of complementary, holistic modalities in promoting health, wholeness, and wellness, even as death approaches. Key topics discussed: Ethical aspects of palliative care Legal aspects of end-of-life decision-making Loss, suffering, grief, and bereavement on the part of patients and their families Symptom-specific nursing management of pain, anxiety, depression, fatigue, malnutrition, and dehydration-all common to palliative care How to communicate with the seriously ill and dying patients, their families, and their health care providers Disease-specific aspects of palliative care for those battling cancer, heart disease, lung disease, HIV/AIDS, end-stage renal and liver disease, neurological, and other disorders
End-of-life care services that can help people with cancer and their families in
coping with cancer and its treatment – from pre-diagnosis, through the process of
diagnosis and treatment, to cure, continuing illness or death and into
Author: Seymour, Jane E.
Publisher: Policy Press
This report explores the current state of end-of-life care policy and practice in the UK. It focuses in particular on the experiences of older people and incorporates their views and those of carers. The issues raised in the report will feed into current debates such as those around palliative health, end-of-life care, and right-to-die legislation.
Individuals coming to the end of their lives often find themselves seeking ways to
make sense of their current experiences, to set them in some sort of context and
to understand and express their life story and its significance. Being able to tell ...
Author: Nigel Hartley
Publisher: Jessica Kingsley Publishers
The many unfounded myths and fears that surround working with people at the end of their lives are dispelled in this thoughtful book, and the authors provide both practical and emotional support for those involved in caring for dying patients. The book covers everything from the philosophy behind the practice to the diverse roles in the multi-disciplinary team, as well as current challenges and opportunities facing end of life care, with an emphasis on how therapy and arts therapies can be integrated effectively. It also looks at palliative care models that address all aspects of a patient's wellbeing and conveys the latest research and challenges in the field, bridging the gap between theory and the realities of working with patients on a daily basis. Using material from artists and therapists working in the field, the varying demands of inpatient, outpatient and home care are described, as well as the processes of bereavement, how to handle the practicalities of loss and the help that therapists can give at this stage. How artists and therapists with experience of working at the end of life can be involved in other areas of care such as supporting older people in care homes and those living with dementia is also discussed. The book also introduces the important area of health promotion, and how there is a growing responsibility to change people's attitudes towards death, dying and bereavement. Clear, practical examples are given as to how this might be achieved. Full of professional advice and career guidance, this book will be an invaluable tool for those working with patients nearing the end of life and those considering working in this area, as well as students in training.
This handbook explores the topic of death and dying from the late twentieth to the early twenty-first centuries, with particular emphasis on the United States.
Author: Robert M. Arnold
Publisher: Oxford University Press
This handbook explores the topic of death and dying from the late twentieth to the early twenty-first centuries, with particular emphasis on the United States. In this period, technology has radically changed medical practices and the way we die as structures of power have been reshaped by the rights claims of African Americans, women, gays, students, and, most relevant here, patients. Respecting patients' values has been recognized as the essential moral component of clinical decision-making. Technology's promise has been seen to have a dark side: it prolongs the dying process. For the first time in history, human beings have the ability control the timing of death. With this ability comes a responsibility that is awesome and inescapable. How we understand and manage this responsibility is the theme of this volume. The book comprises six sections. Section I examines how the law has helped shape clinical practice, emphasizing the roles of rights and patient autonomy. Section II focuses on specific clinical issues, including death and dying in children, continuous sedation as a way to relieve suffering at the end of life, and the problem of prognostication in patients who are thought to be dying. Section III considers psychosocial and cultural issues. Section IV discusses death and dying among various vulnerable populations such as the elderly and persons with disabilities. Section V deals with physician-assisted suicide and active euthanasia (lethal injection). Finally, Section VI looks at hospice and palliative care as a way to address the psychosocial and ethical problems of death and dying.
PALLIATIVE CARE SERVICES With the growing number of elderly people in the
United States, the decision to forgo traditional curative therapies and request
palliative treatment is likely to become more and more prevalent (Perron ...
Author: Caroline Young
Understanding the psychological, social, and spiritual needs at the end of life is crucial for today’s health care providers. The goal of End of Life Care Issues is to provide an overview of end-of-life care, with an emphasis on the team approach to care; providing compassionate hospice and palliative care; understanding ethical issues; meeting psychological, social, and spiritual needs; addressing cultural considerations; managing symptoms effectively; and using complementary and alternative therapies in end-of-life care. It covers in depth areas such as pain management, death and dying, and physiologic changes. The course has a total of 26 nationally recognized ANCC contact hour credits available. Those readers who wish to have an accompanying program with video and interactivity should also purchase the CD version. The general reader with a need to understand end of life care will also appreciate having a clearly written, authoritative, and professional guide.
patients experience distressing symptoms at the end of life that can be relieved
through palliative care. Palliative care, which focuses on comfort and
psychosocial support, is a foundation for all health care. Early in disease, many
Author: Lois Snyder
Publisher: ACP Press
Patients want better end-of-life care, and physicians want to provide it. But in a society where high-tech interventions are often emphasized, moving from curative treatment to comfort care is sometimes difficult. Often, patients in the last phase of life want both continued aggressive treatments and the benefits of palliative measures. Many physicians have never been trained in palliative measures and end-of-life care. It is a challenging area but one in which clinicians can enhance the quality of life for seriously ill patients.
There is increasing awareness among renal healthcare professionals about the
need for good supportive care at the end of life and therefore increasing
involvement of palliative care teams. The authors include a renal physician, a
Author: Edwina A. Brown
Publisher: Oxford University Press
This book provides practical guidance on end of life management for patients with renal disease. It is presented in easily accessible, bullet point style, and is illustrated with case histories from real life patients, and drug tables.
Chapter 2 Decision Making About End of Life Care: Advance Directives, Durable
Power of Attorney for Healthcare, and Talking with Patients with Heart Disease
About Dying Craig Tanner Abstract Advancing technology has complicated ...
Author: Sarah J. Goodlin
End-of-life issues in cardiology are becoming increasingly important in the management of patients in the cardiac unit, but there is frequently a lack of understanding regarding their impact on cardiology practice. The cardiac unit is increasingly becoming the location whereby a number of key clinical decisions relating to end-of-life care are being made, such as the decision to remove medications, the appropriate removal of cardiac devices, the management of do not resuscitate orders and the requirement for other cardiac procedures in light of the management of the terminally ill cardiac patients. Those working in palliative care need input from the cardiovascular team as the cardiologist is frequently still managing these patients until they are moved to the hospice. That this move into a hospice is often delayed until the very last moment, there is considerable onus on the cardiovascular management of these patients to be much broader in scope and take account of some of the more palliative medical decisions needed in this group of patients. This concise reference will detail the practical issues open to cardiovascular physicians and those medical professionals who manage patients reaching the end of their life from a cardiology perspective. It will detail the full management options open to them to ensure that their practice is in line with the requirements of the patient nearing the end of their life whether the cause be cardiovascular in origin or who need appropriate management of secondary cardiovascular symptoms. It will also include the various ethical, cultural and geographical issues that need to be considered when managing these patients.
Nigel P. Sykes Abstract Good end of life care always requires preparation, but
this is especially so in neurological disease, where the signs of impending death
can be unclear and there may be a substantial period of mental incapacity.
Author: David Oliver
Publisher: Springer Science & Business Media
As end of life care is extended to more and more people it is increasingly important that people with progressive neurological disease are recognised as having particular issues as their disease progresses. This group of people with advancing motor neurone disease, multiple sclerosis, Parkinson’s disease, multiple systems atrophy, progressive supranuclear palsy, Huntington’s disease and other progressive neurological disease face increasing problems – with physical symptoms and psychosocial and spiritual issues for both themselves and their families and carers. This book encourages health and social care professionals to become closely involved in the care of these people and their families, so that advance care plans can be started and quality of life maintained. This book addresses the principles and practice of developing end of life care strategies for neurological disease, written with a clinical, multidisciplinary focus and illustrated with detailed case studies.
1 Introduction Death and dying in today's managed care society are messy. I do
not mean messy physically (although that may be the case as well), but messy
emotionally and philosophically. This is particularly true when considering issues
Author: Stephen W. Smith
Publisher: Cambridge University Press
Stephen W. Smith explores the legal and ethical issues involved in end-of-life decision making.